About Me

I’m a ferocious lover of life, possessing the courage and loyalty of a warrior, but the morality of a pirate. A man of huge appetites and wild passions. Impulsive, unreflective, optimistic, conceited, generous, and brutally honest.

This blog will be all about me and my adventures in life, living with FOP. I will try to do as much as I can for as long as I am able and have people who feel the same way. Alot of the current FOP parents want to put helmets and pads on their children to try and prevent bone growth caused by an injury or trauma.

My parents didn’t know that injuries could limit my movement in as little as 24 hours after something happened. So for that reason I got to do a lot of activities like Horseback riding everywhere in the mountains of Colorado and New Mexico, Bunjee Jump off the Rio Grande Gorge Bridge in Taos to skateboarding on halfpipe ramps and riding steers. The doctors would always tell my mom and dad that I would only live until 12 then 14 then 16 and 18 but now I am almost 33 and have lived a pretty active and full life.

I hope other people will read my stories and have the want or drive to want to do the same things instead of feeling trapped in their bodies.

Peace Out

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