Crooked Guy Blog

Posts Tagged ‘disabled’

Hey Ya’ll this is my new project I have been working on for the last couple weeks. I had lots of people tell me I need to write a blog about all my experiences I have even thought I have a debilitating Muscular Disease, FOP. Fybrodysplasia Ossificans Progressiva is one of the rarest diseases in the world and I am one of 3 patients in the state of Texas with it.

Me and my wife, Lori, have been able to still go to a lot of music concerts, sporting events, hunting and even bowling despite me not be able to move anything but my elbows, wrists, hands and slight movement in my feet.

Stay tuned for updates daily hopefully so tell your friends and join and comment on my blog!